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    Last Updated: 10/30/2025

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    MediFind found 15 doctor with experience in Dysferlinopathy near San Francisco, CA. Of these, 13 are Experienced and 2 are Advanced.

    Location
    LocationClose
    15 providers found
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy
      2324 Sacramento St, Suite 150, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Robert Miller is a Neurologist in San Francisco, California. Dr. Miller is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Emery-Dreifuss Muscular Dystrophy, Walker-Warburg Syndrome, and X-Linked Dominant Scapuloperoneal Myopathy.

      Sacha Z. Niemi
      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Mission Bernal Care Center

      1580 Valencia Street, Floor 3, 
      San Francisco, CA 
       (1.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sacha Niemi is a primary care provider, practicing in Family Medicine in San Francisco, California. Dr. Niemi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Type 2 Diabetes (T2D). Dr. Niemi is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Dysferlinopathy
      Neurology
      Advanced in Dysferlinopathy
      Neurology

      Ucsf Medical Group Business Services

      400 Parnassus Ave, 
      San Francisco, CA 
       (2.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Manu Hegde is a Neurologist in San Francisco, California. Dr. Hegde is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Seizures, Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), Partial Seizure, and Limb-Girdle Muscular Dystrophy.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Ann Poncelet is a Neurologist in San Francisco, California. Dr. Poncelet is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Hereditary Neuralgic Amyotrophy, Multifocal Motor Neuropathy, Brachial Plexopathy, and Chronic Inflammatory Demyelinating Polyneuropathy.

      Experienced in Dysferlinopathy
      Physiatry | Pain Medicine
      Experienced in Dysferlinopathy
      Physiatry | Pain Medicine
      1825 4th St Fl 5, 
      San Francisco, CA 
       (2.2 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients

      Sheanhuey Ng is a Physiatrist and a Pain Medicine provider in San Francisco, California. Dr. Ng is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Focal Dystonia, and Contracture Deformity. Dr. Ng is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatrics | Pediatric Neurology | Neurology
      Experienced in Dysferlinopathy
      Pediatrics | Pediatric Neurology | Neurology

      Ucsf Medical Group Business Services

      400 Parnassus Ave, 
      San Francisco, CA 
       (2.2 miles away)
      Languages Spoken:
      English

      Jonathan Strober is a Pediatrics specialist and a Pediatric Neurologist in San Francisco, California. Dr. Strober is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Floating-Harbor Syndrome, Becker Muscular Dystrophy, Increased Head Circumference, and Thymectomy.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      University Of California San Francisco

      400 Parnassus Ave, Mcb300, 
      San Francisco, CA 
       (2.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Paul Sampognaro is a Neurologist in San Francisco, California. Dr. Sampognaro is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Ucsf Medical Group Business Services

      400 Parnassus Ave, 
      San Francisco, CA 
       (2.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Laura Rosow is a Neurologist in San Francisco, California. Dr. Rosow is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3.

      Experienced in Dysferlinopathy
      Neurology | Pediatrics
      Experienced in Dysferlinopathy
      Neurology | Pediatrics

      Ucsf Medical Group Business Services

      505 Parnassus Ave, M1490, 
      San Francisco, CA 
       (2.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jeffrey Ralph is a Neurologist and a Pediatrics provider in San Francisco, California. Dr. Ralph is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Peripheral Neuropathy, Miller-Fisher Syndrome, Chronic Polyradiculoneuritis, and Guillain-Barre Syndrome.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Ucsf Medical Group Business Services

      505 Parnassus Ave, M1490, 
      San Francisco, CA 
       (2.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Mark Terrelonge is a Neurologist in San Francisco, California. Dr. Terrelonge is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Ucsf Medical Group Business Services

      505 Parnassus Ave, 
      San Francisco, CA 
       (2.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Catherine Hoerth is a Neurologist in San Francisco, California. Dr. Hoerth is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal Muscular Atrophy (SMA).

      Sonia Garg
      Experienced in Dysferlinopathy
      Advanced Heart Failure and Transplant Cardiology
      Experienced in Dysferlinopathy
      Advanced Heart Failure and Transplant Cardiology

      Oakland Care Center

      350 30th Street, Suite 411, 
      Oakland, CA 
       (9.0 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sonia Garg is an Advanced Heart Failure and Transplant Cardiologist in Oakland, California. Dr. Garg has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Heart Failure, Cardiomyopathy, Pulmonary Edema, Heart Transplant, and Lung Transplant. Dr. Garg is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      3701 Broadway Fl 1, 
      Oakland, CA 
       (12.4 miles away)
      Languages Spoken:
      English

      Kyle Menze is a Physiatrist in Oakland, California. Dr. Menze is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Spasticity, and Oppenheim Dystonia.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine
      751 San Pedro Terrace Rd, 
      Pacifica, CA 
       (13.6 miles away)
      Languages Spoken:
      English

      Gary Birnbaum is a primary care provider, practicing in Family Medicine in Pacifica, California. Dr. Birnbaum is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Acute Myeloblastic Leukemia without Maturation, Acute Myeloid Leukemia (AML), Acute Myeloblastic Leukemia with Maturation, and Dysferlinopathy.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      2500 Merced St, 
      San Leandro, CA 
       (14.7 miles away)
      Languages Spoken:
      English

      Will North is a Neurologist in San Leandro, California. Dr. North is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Multifocal Motor Neuropathy, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

      Showing 1-15 of 15

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor near San Francisco, CA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor near San Francisco, CA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors near San Francisco, CA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors near San Francisco, CA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor near San Francisco, CA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor near San Francisco, CA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors near San Francisco, CA?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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